Welcome to The MAGIC Foundation's Skeletal Dysplasia division in partnership with Little Legs Big Heart. We are dedicated to providing information, support, and advocacy for individuals and families affected by skeletal dysplasia, commonly known as dwarfism.
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Skeletal Dysplasia Conference
November 8 - 10, 2024
Embassy Suites
Palm Beach Gardens, Florida
(info coming soon)
Our Mission
Empowering lives, building community and fostering connection between children and adults living with skeletal dysplasia, their families, advocates, health care professionals and researchers.
About Us
In 2023, Kristen DeAndrade, the woman behind Little Legs Big Heart, officially joined forces with The MAGIC Foundation to lead their newly created Skeletal Dysplasia Division. Originally their Achondroplasia Division Consultant, Kristen has always felt ostracized by The Little People of America due to her decision to undergo lengthening as a child and did not want to be exclusive to the most common form of skeletal dysplasia. We welcome all forms of skeletal dysplasia here at MAGIC, whether known or unknown. We are a patient and community-focused organization advocating for individuals affected by skeletal dysplasia and their families. The Skeletal Dysplasia Division of the MAGIC Foundation understands that there are far too many factors that make up a skeletal dysplastic individual’s life to be able to predict how they will feel or what will happen in the future. So at the end of the day, it is our mission to provide any and all resources for an individual and their family to live a healthy, happy life. The most important thing to remember is that this will look different for EVERYONE.
Skeletal Dysplasia
Skeletal Dysplasias are a diverse group of genetic disorders commonly referred to as dwarfism. These conditions are characterized by the unique challenge of abnormal bone and cartilage growth, leading to shorter stature. With over 200 different types of skeletal dysplasia, each driven by its own genetic mutation, it is a complex landscape. Achondroplasia, the most common form, constitutes around 70% of all cases of dwarfism.
The roots of skeletal dysplasia often lie in specific genetic mutations affecting bone and cartilage development, which can be inherited or arise spontaneously. Diagnosis usually occurs in infancy or early childhood, relying on physical traits and X-ray scans, with genetic testing providing precise classification.
Living with skeletal dysplasia can bring various health challenges, including joint problems, spinal curvature, orthopedic deformities, hearing impairment, and breathing difficulties. While there is no cure, there are management options. Physical therapy, orthopedic surgeries, and assistive devices like wheelchairs can improve the quality of life. The MAGIC Foundation and Little Legs Big Heart stand committed to offering comprehensive information, including controversial management options like limb lengthening and emerging pharmaceutical treatments like VOXZOGO.
Most individuals with skeletal dysplasia lead fulfilling lives with proper medical care and support, often enjoying a normal lifespan. Regular medical monitoring is vital to address potential health issues. Moreover, we emphasize the importance of using respectful terminology when referring to individuals with skeletal dysplasia, promoting inclusivity and respect for diversity. Though the term "dwarfism" is common, many prefer "little person," "dwarf," or simply as a person living with their particular form of skeletal dysplasia.
Society has evolved to become more inclusive and accommodating, with legislation and policies ensuring equal access to education, employment, and public spaces. Awareness campaigns and educational initiatives work tirelessly to reduce stigma and discrimination related to dwarfism, within society, the media, the fashion industry, etc., fostering a more inclusive and understanding world. Join us in supporting and empowering individuals and families affected by skeletal dysplasia.
“The MAGIC Foundation’s extensive global database helped me find a medical team that aligned with my needs.”
— Robin T., MAGIC Foundation Member